NCRAD - The National Cell Repository for Alzheimer's Disease
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How Families Can Participate

There are a variety of opportunities for families with two or more living members with Alzheimer’s disease to participate in research. Listed below are some of the studies that are currently recruiting families. For further information about any of these studies, please contact the National Cell Repository for Alzheimer’s Disease at 1-800-526-2839 or by email at alzstudy@iupui.edu.


NIA Alzheimer’s Disease Genetics Study
The NIA Alzheimer’s Disease Genetics Study seeks to enroll 1,000 families in which a pair of living siblings (brothers or sisters) has Alzheimer’s disease. Families will often be seen at one of the 29 Alzheimer’s Disease Centers located throughout the country. A blood sample collected from each participating individual will be sent to the National Cell Repository for Alzheimer Disease (more information), located at Indiana University, where DNA will be obtained from the blood and used for further genetic studies.

Families interested in participating in this research must meet the following criteria:

  1. Two LIVING siblings diagnosed with Alzheimer’s disease after the age of 60 years.
  2. A third family member who is either:
    • Diagnosed with memory loss or Alzheimer’s disease after the age of 50 years.

    • OR
    • Without symptoms of memory loss or Alzheimer’s disease and over the age of 60 years.

Families meeting these criteria and interested in learning more about this important research study should contact the National Cell Repository for Alzheimer’s Disease at 1-800-526-2839 or by email at alzstudy@iupui.edu.


Other NIA Family Studies
A. If your family has two or more living members with Alzheimer’s disease, but they are not brothers or sisters, there are still opportunities for you to participate in research to help identify the genes contributing to the risk for other forms of dementia. For more information, please contact the National Cell Repository for Alzheimer’s disease at 1-800-526-2839 or by email at alzstudy@iupui.edu.


B. If your family has multiple members with memory loss or dementia that does not appear to be due to Alzheimer’s disease, there are still opportunities for you to participate in research to help identify the genes contributing to the risk for Alzheimer’s disease. For more information, please contact the National Cell Repository for Alzheimer’s disease at 1-800-526-2839 or by email at alzstudy@iupui.edu.


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