NCRAD - The National Cell Repository for Alzheimer's Disease
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Frequently Asked Questions About NCRAD

Where is the Repository located?
NCRAD is housed at Indiana University Medical Center in Indianapolis, Indiana. However, we work with families nationwide. It is not necessary for study participants to come to Indiana.

NCRAD Offices
NCRAD Offices – Health Information and Translational Sciences Building

Walther Building
NCRAD Laboratory – Walther Hall

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How might family members be asked to participate?

  1. Provide family history information. As part of a family's participation in this study, you may be asked to provide family history information. You may also be contacted periodically for additional or updated family information.

  2. Provide a blood sample. The blood samples that we request are not used to test for a diagnosis of AD or whether an individual will develop AD. These samples are used to obtain the genetic material, DNA, which is used for research.

  3. Provide documentation of clinical history. Family members may be asked to sign a medical release so that we can obtain documentation of serious memory loss or AD within the family. Some members may be asked to undergo physical and/or neurological examinations. These examinations may be performed in a clinical research center or an Alzheimer's disease researcher may come to see the family member.

  4. Plan an autopsy for yourself or a loved one. One other way that we can learn more about AD is through the careful examination of brain tissue of family members who have been diagnosed with AD. We can work with families to arrange an autopsy plan and we will help cover the costs associated with the autopsy. Learn more about the importance of autopsy.

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Is participation ever mandatory?
Participation in all NCRAD studies is completely voluntary. All individuals must sign an Informed Consent statement and Authorization for the Release of Health Information for Genetic Research form in order to participate in the project. Individuals are free to decline or discontinue participation at any time. There should be no cost to take part in the study. All information you provide will be kept confidential.

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Can the repository test my genes to tell me if I’m going to get Alzheimer’s disease?
No, NCRAD does not ever release genetic testing results to individuals.  Any testing done at NCRAD is for research purposes only.  If you would like to learn more about available testing for Alzheimer’s disease related genes, please visit http://www.geneclinics.org to find laboratories offering clinical testing.

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How do I learn more?
To learn more about NCRAD, please visit our Contact page, or contact us by e-mail at , by telephone (toll free) at 1-800-526-2839, or by writing to us at the address below:

National Cell Repository for Alzheimer’s Disease (NCRAD)
Division of Hereditary Genomics
Health Information and Translational Sciences Building
410 West 10th Street, HS 4000
Indianapolis, IN 46202-3002

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